FPIES Update

On Sunday, Mother’s Day, I ended up going home sick from work because I puked. I was feeling out of it. I had had a headache for a couple days. I still went to my ex’s house for dinner after taking some Zofran. However, I left right after and went to bed by 6 pm. I didn’t sleep through, but I stayed in bed until 8 am the next day. In the morning, I still had a headache when I woke up but my stomach felt 100% better. That’s the thing about FPIES, once it is out of your system you are normally fine.

I was worried about soy allergy because it is so closely related to dairy, however, I ate soy sauce with my sushi last night and it didn’t affect me at all. Really not sure what bothered my stomach this weekend. I wonder if I only threw up because of my migraine and the rest was from the small bit of Nutella I had Friday morning? I’m unsure. The only other thing that timing wise made sense was that the pasta sauce upset my stomach a bit. I have some leftover which I’ll probably eat today. I am expecting it to be fine but I do swear at one point I had an issue with basil.

One of the things I have to be careful about is not overreacting. Making sure I am really allergic to something is important so I am not cutting out foods for no reason. When I had the basil issue, I noticed that once I made homemade pasta and forgot the spices at the end. I was able to eat that fine but not canned sauce. I made it again with basil and oregano and was sick. The third time I made it with just oregano and was fine. If I were to do this again, I would eat basil on like a potato which I know is safe, and see how I felt just to be extra sure. There are a lot of ingredients in store bought pasta sauce and it could be anything.

A lot of times I’ll get sick from a normal meal with a bunch of ingredients. It takes some detective work to figure out what is going on and narrow down the one thing upsetting my stomach.

I reallllllly hope it is just dairy this time. I can live without dairy. Last bought of allergies even vegan pizza upset my stomach. Even if I can’t eat dairy ever again, it would be super nice to be able to eat vegan cheese. I don’t know how to end this (haha). Wish me luck?

FPIES Hitting Me

My stomach is a mess. I know I had some Nutella yesterday morning, which has dairy in it, but usually it doesn’t affect me the next day. I’m half convinced I’m back to having multiple food allergies but it too soon to say. Going to have to go a few more days without dairy. Pretty embarrassing but I’m so gassy today, which is unusual for me. If I fart one time its usually allergy related. When I’m feeling well, I just don’t fart (haha).

If you don’t know I have FPIES which is food allergies that make you puke or have diarrhea within certain time frames.

Today, I also have had bad acid reflux mixed with nausea, which, for me, is always related to my allergies.

I’m feeling a little anxious and depressed. I wish I could go back on my McDonalds diet of three hashbrowns for breakfast and two hamburgers for lunch and dinner. Joking. But not joking. It seriously worked. My stomach was mint and my allergies were under control.

A few months ago I couldn’t eat dairy, soy, pork, bell peppers, and eggs. I am very curious if that is what the problem is. I didn’t really eat any of those today though, besides some egg powder in chicken strips. Before that never bothered me this much though.

Yesterday I did have chilli with bell peppers, beans and corn for lunch. I just find it weird that I would be so affected the next day, especially the acid reflux, which has gotten worse through the night (but wasn’t bad this morning).

I’ll let you guys know what’s what in a few days when this dairy gets out of my system more. Hope you are doing well!

I Was Told To Let My Son Die, Fuck That

Not naming names but when my son was six months old he was in the hospital for FPIES. We had switched to formula due to doctor recommendations. They were worried about my health while breastfeeding on such a restricted diet.

Within a week we had tried three different formulas and he was allergic to them all. It was a long weekend and he couldn’t keep down any of the prescription formula. We brought him to the hospital who said he needed to be breastfed. We went back to it immediately.

The person, who was close to our family, had been against breastfeeding Gavin from the start. They knew that most sick babies take formula and they were very concerned about my diet. I called them to let them know that Gavin was in the hospital and the conversation got heated. They told me I can’t go back to breastfeeding him and I need to let him die. They were convinced that Gavin wouldn’t make it no matter what and I was just going to die too if I kept going.

There’s a lot of choice words I have to say if I was still talking to this person. I fucking saved his life. I’d do anything for my baby boy. I couldn’t live with myself if I had just given up and let him starve to death.

One thing time has given me is this: I get it. I don’t agree with it, but I understand where they were coming from. I understand that they were scared and they thought they were helping. I understand that they just love me and my husband and were tired of watching us struggle.

I don’t know if I can ever forget it though. Not just that comment, but the months of fighting over breastfeeding. I don’t know if we ever want to see each other again.

I hope that if you have a baby out there, it’s healthy. I hope that no one harasses you over your choice to breastfeed or formula feed your little girl/guy. I hope that the people around you can support you past their own fears.